Data flows?
Making and Sharing Data in Biomedical Research:
Between Local and Cross-Border Practices
Dates: 10-11 April 2024
Location: Historical Archive of the National and Kapodistrian University of Athens (45, Skoufa str., Athens)
Online participation: Webex webinar (requires registration)
Programme (Time zone: EET (UTC+03:00))
Wednesday, 10/04
10:00-10:15 Welcome messages
Professor Anthony E. Hatzimoysis, Chair, Department of History and Philosophy of Science, National and Kapodistrian University of Athens
Professor Aristotle Tympas, Director, Interdepartmental Graduate Program ‘Science, Technology, Society / Science and Technology Studies (STS)’, National and Kapodistrian University of Athens
10:15-11:15 Session 1
Chair: George Pertsas (National and Kapodistrian University of Athens)
“Data as kin: relatedness and material exchange in bioscientific practice in Japan”
Rebecca Carlson, Toyo University (*online)
“Making Data Flow: The Journey of T-CELLS into CAR T-CELLS”
Isabel Briz Hernández, The Chinese University of Hong Kong (*online)
11:15-11:45 Coffee break
11:45-12:45 Session 2
Chair: Kostas Raptis (National and Kapodistrian University of Athens)
“Responsible innovation, ethical concerns and governance of bio banks: Exploring the case of umbilical cord blood (UCB) banking in India”
Astha Jaiswal (Manipal University), Vikrant Sharma (All India Institute Medical Sciences) & Hemant Kumar (Central University of Gujarat)
“Ethical issues of concern in the making of a biobanking network in Greece”
Yulie Foka-Kavalieraki & Katerina Vlantoni, National and Kapodistrian University of Athens
12:45-14:30 Lunch break
14:30-15:30 Session 3
Chair: Athanasios Barlagiannis (Academy of Athens)
“Measuring up Chinese Children across the Pacific: Vivia B. Appleton’s Transnational Anthropometric Research”
Shu Wan, University at Buffalo
“Diversity and Justice in Data-driven Translational Research”
Elise Li Zheng, Division of Ethics, Columbia University Irving Medical Center (*online)
15:40-16:40 Session 4
Chair: Stavros Ioannidis (National and Kapodistrian University of Athens)
[cancelled] “Epidemiological knowledge production based on traditional cohorts and large scale linked health and social data in Brazil”
Mariana Pitta Lima & Bethânia Almeida, Centre for Data and Knowledge Integration for Health (Cidacs Fiocruz) Brazil (*online)
“Making Ignorance – An Anthropological Examination on the Knowledge Gap of the Long-Term Health Risks of Ovulation Induction Drugs”
Yining Pan, Washington University in St. Louis (*online)
16:50-17:50 Session 5
Chair: George Zoukas (National and Kapodistrian University of Athens)
“Biobanks for social science? Data- and values-sharing between biobanks and social genomics”
Bennett McIntosh, University of Wisconsin–Madison (*online)
“Integrating Big Data and AI in research infrastructures: the case of ‘digital biobanks’”
George Melanitis, University of West Attica
End of Day 1
Thursday, 11/04
9:30-11:00 Session 6
Chair: Marilena Pateraki (National and Kapodistrian University of Athens)
[cancelled] “Governing Genetic Sequence Data in the Age of Open Science: Southeast Asian Perspectives”
Sonja van Wichelen, The University of Sydney (*online)
“Assetising patient data for health and wealth: the care.data controversy in England”
Paraskevas Vezyridis, Nottingham University Business School
“‘A potential gold mine’: Making and communicating biobanking initiatives in Greece”
George Zoukas & Katerina Vlantoni, National and Kapodistrian University of Athens
11:00-11:30 Coffee break
11:30-12:30 Session 7
Chair: Constantinos Morfakis (National and Kapodistrian University of Athens)
“The envisioned use and value of Health Data Access Bodies in the context of the future European Health Data Space”
Anders Korsgaard, National and Kapodistrian University of Athens
“Data sharing by online platforms for biomedical research under the Digital Services Act”
Jarosław Greser, Warsaw University of Technology/Cyber & Data Seurity Lab at the Vrije Universiteit Brussel (VUB) (*online)
12:40-14:00 Roundtable Discussion – Closing Remarks
Workshop participants and invited scholar & stakeholder Dr. Sissy Kolyva (Molecular Biologist, Representative of Greece in BBMRI-ERIC, Hellenic Pasteur Institute)
End of Workshop
The Workshop is organized in the context of the research project “Contextualizing biobanking in Greece: histories, practices, discourses – BIO-CONTEXT” (2021-24), which is funded by H.F.R.I. and hosted in the Department of History and Philosophy of Science, National and Kapodistrian University of Athens.
Workshop organizers: Assistant Professor Katerina Vlantoni, Dr George Zoukas and Dr Yulie Foka-Kavalieraki, members of the BIO-CONTEXT research team.
